TED Talk – Jennifer Brea
Jennifer Brea co-founder of #MEAction and #Missing Millions campaign talks about her experiences with M.E. This is the first TED Talk about M.E. filmed at the 2016 summit in Banff, Canada and launched at the start of 2017. Another important factor Jennifer highlights is raising awareness of the condition and the need for further medical research to be carried out.
Action For ME
If you don’t already know what it feels like, this short clip on the Action for ME website is good at highlighting the emotions people experience. Action for ME has excellent resources in place and a lot of information whether you are living with ME, a health care professional, or an employer or teacher.
NHS Overview
Please click on this link which provides a general overview of the symptoms. There is a video at the bottom of the page where you can watch Dr Charles Shepherd talk about the symptoms and how GP’s diagnose the condition. Cognitive Behavioural Therapy (CBT) is recommended.
Yoga
Fiona Agombar’s book Beat Fatigue with Yoga is a resource that I found useful in my recovery. It is specifically tailored to those who are recovering from M.E. Fiona has now released a dvd to help people with their practice at home. Here is a short 15 minute routine that you can try.
—Supported recovery programmes—
In my research I have found a few brilliant organisations who help people with their recovery process. The clinics and therapy options are well researched and have helped a lot of people on their journey to recovery.
Optimum Health Clinic
Alex Howard, founder of the Optimum Health Clinic talks about his experience with M.E. and his motivation behind setting up the clinic. This amazing charity organisation has helped many people on their road to recovery. If you request a free information pack here you will receive a clear report outlining the different treatment options and a documentary following three peoples experiences of recovery.
Mickel Therapy
Dr David Mickel has developed a therapy treatment that helps to balance the problems that arise in the hypothalamus gland for people who have M.E. During the Mickel Therapy process people are coached in order to build a stronger neurological pathway which has allowed for a reduction in symptoms and helps to aid recovery. You can read Leisa’s testimonial here. This is a video where David Mickel explains more about the therapy.
Professor Roddy Cowie talks further about the science of Mickel Therapy.
The Chrysalis Effect
Elaine Wilkins founded The Chrysalis Effect after her own experience with M.E. in 2000 which took her six years to recover from. Upon Elaine’s recovery she was passionate about helping others who were suffering, especially after hearing about an assisted suicide of someone in their mid thirties on living with the illness. The need to help others in a similar situation and demonstrate that recovery is possible drove her to launch the Chrysalis Effect recovery programme. Listen to Elaine speaking about her experiences here.
This video provides testimonials of peoples recovery process as a result of the Chrysalis Effect programme.